Monday, May 31, 2010
Thursday, May 27, 2010
We aren't sure it's the same, but really... two turtles happened into my backyard...I think not.
We have decided to name him/her Turla because that is how Zeke says turtle. We look for it every day when we go outside. Zeke loves finding it and talks to it whenever he finds it.
Tuesday, May 25, 2010
- After being checked a few times to see if he needed a diaper, he looked at me and sternly said “NO, poopy!"
- In the backyard we have a turtle that hangs out, after hearing Spence tell the turtle not to eat his plants, Zeke squated down to the turtle and said "Turla, look at ME!”
- “Zeke what are you doing?” while he was at the directv box; he replied “pushing buttons” with a smile
- Singing at Daylight Donuts “nonut, nonut, nonut”- yeah he made up a song about donuts
- Nana couldn't understand what he was saying so he drug it out and said "COOOOLLLLOOOORRR!"
- Singing in the car “big yellow tractor”- his other love in life
- One morning he was talking and I didn't understand him, so I asked him "what, buddy?", he said "I said..."
- Many times a day says "pray" and when I ask what we should pray about he names someone. Sometimes Nana, sometimes Scott, often Amber, and recently Sawyer
- I was cleaning up something on the carpet and Spencer tackled me and started tickling me. Zeke ran over saying "No, sir. No, sir! No, no, Dada!"
Sunday, May 23, 2010
3 out of 4 ain't bad...
Friday, May 21, 2010
As written by Cher around 11 am Friday, May 21:
Party people, we are breakin' out of this joint, and headed to the Lair! we decided sawyer is headed from rec (rereational) therapy to the more organic "wreck" therapy instigated by 3 bouncy, jacked-up, often over-zealous (yet loving) brothers (expecting, "mommy, this incision really won't open back up, no matter how hard i try", or "mommy, i put the staples back in his leg"). fun times ahead! still waiting on the staples and sutures to be removed, and for an official discharge, but we are packing up! little man is taking one last run at the playground, and then we're off to see the boys! i HAVE to take a moment to recognize the people who have cared for us so well, and made it possible for us to stay here round the clock with sawyer: *MISS BECCA BOCK got into her car a week ago (in boston), and started driving when she heard we might need help, and has been with the boys for NINE days now. NINE. she has fed them, clothed them, taken the to movies and field trips, and most importantly, loved on them and kept them just informed enough to know we're ok, and just ignorant enough not to be completely freaked out...a true mommy in the making! then, her sister, KATE, whom i have only met 3 times, drove from atlanta to help her! she then paid to have our carpets and upholstry professionally cleaned and de-germed. rockstar diva. she may also been in mexico somewhere with the baby, but we're not totally sure yet...one thing at a time. *KRISTIN BROUGHTON swooped in with a vengeance and cared for the boys, made meals, organized meal drop-offs for the boys, and did the horrifying deep-clean of the very infected Lair house! She is a superstar! *JULIE FORREST did not even blink when we needed help with baby Houston, and just took the whopper jr. into her home as one of her own. not totally sure she's giving him back, but we're in talks. *there are just SO MANY of you to thank that i could not possibly name you all, so please do not feel we have overlooked you, but i wanted to make sure the world knew what amazing ROCKSTAR women I am privileged to call my friends. we have been loved on by the greears, treeces, heidorns, poseys, biggerstaff/tresolahvys (sp?), babers, wiggins, culbersons, franks, sheltons, hills, sullens, broughtons, foster-coburns, douglas', gaynors, and just so many more that i don't even know about. i know many of you have taken meals over to feed the boys and miss becca, and i just cannot thank you enough for filling up their tummies and making it easier on miss becca. Kristin, Terri Turner and Miss Dorris cleaned our freakin' house so we would not have to return to a den of scary, streppy filth, and for that, we are SO THANKFUL. it has probably never been, and will never be again! our INSANE laundry mountain was also sent to a laundromat and professionally cleaned, and honestly, i don't even know who to thank for that! superheroes you are!! many of you (jen heidorn, christy lassiter) helped with drop-offs/pick-ups and playdates to help the machine run smoothly and keep the boys nice and distracted. you win. I LOVE YOU ALL! * i am just utterly flabbergasted by the outpouring of love and support you all have shown, from near and far. those of you that couldn't be here encouraged me daily with your prayers, calls, notes, and scriptures. i love you for it. I LOVE HOW YOU LOVE OUR LITTLE (but not so little anymore) FAMILY! i want to be the kind of friend that you all are, and i am utterly convicted and challenged because i know i have not been. you have changed me forever. now, let's (gently) rip out these sutures, and get outta dodge! Romans 8:28 "for we know that all things work together for good for those who love God, and those are called according to his purpose"...i'm claiming this mess for GOOD!!!!
Wednesday, May 19, 2010
the Creator of the ends of the earth.
He does not grow faint or weary;
Throw the ball
or just hit it with a bat... or shovel
Resting after lots of playing
They devoured their popsicles!
Ben even got in on the fun
They definitely egg each other on...
Tuesday, May 18, 2010
Here is the quick and fast of what all has gone down, told to me by them:
Sawyer had a version of hand, foot, and mouth (as did the other boys). Somehow they are thinking that because Sawyer picked at his sores around his mouth that he got a strep infection in his blood. (all the boys also have the strep infection, but it hasn't gotten into his blood- everyone is now on antibiotics) This infection caused swelling in his leg. They cut one long incision on the outside of his left leg and three smaller ones along the inside of the left leg. When they went in to operate, any number of things could have been found. What they found was good because it wasn't spreading like crazy and it hadn't attacked muscle or bone. They weren't able to close the wounds all the way up because of the swelling being so much. This is why he had to have another surgery yesterday to staple his big incision more closed. They are hoping to have xrays today to look for more infection in his leg. His fevers keep coming, although not at high or as frequently. (this is the meningitis part, but it is viral not bacterial which is also the good case version). He has been on a cocktail of antibiotics so there really shouldn't be any other infection needing to be fought. They have been told by the PT that Sawyer can not go home until he walks, they have been told by infectious disease people that he can't go home until he isn't getting anymore fevers.
Sawyer will walk on his own
Sawyer will stay fever free for 24 hours
Continued strength, peace, and wisdom for Cher and Stephen
Sunday, May 16, 2010
Saturday, May 15, 2010
"Rough day of physical therapy today with boughts of high fever thrown in for extra fun. Infectious Disease folks insisted we all get tested and as it turns out Jackson, Campbell, Houston, and me all have Strep Group A. Sawdog is slotted for more surgery on the leg on Monday. Computer access limited now- I will try to post a note soon."
Thursday, May 13, 2010
It has been said that there is nothing so pure as the laughter of a child. I am here to tell you that I agree. Today we saw a spark. For around ten minutes this afternoon, Sawyer perked up for the first time in what seems like an eternity. It didn't last long, maybe fifteen minutes but those were the fifteen minutes Cher and I needed most. He ate a couple animal cookies. He drank some apple juice. He was responsive to questions. He showed interest in a toy tool set that had been brought into the room. But most of all he laughed. Not a hearty guffau, not a full-fledged belly laugh varietal but a laugh nonetheless. That was as sweet a sound as I believe either of us has heard to date. We needed that. We know now that his body will heal. Every step has been taken to address all of the different infections raging through his body. What we needed to know was that the cheery, happy little man that we have fallen in love with over the last two years was still there underneath all the wires, swollen, tissue and bandages. Once again the God we serve knew exactly what both of us needed and he delivered in a way that only a father who knows his children could. At this point the medical team feels that we are heading out of the woods. His temperature remains a source of concern and ranged from 99-103.7. The white blood cells found in the spinal fluid are indicators of menangitis but all evidence points toward the viral and not the far more dangerous bacterial. This is an interesting "coincidence" as everyone other part of his body is fighting of a bacterial infection. We got our first look at the wounds on his leg and that was sobering. The three small incisions were not the small that I was expecting; ech measuring around three inches in length and held together by four or five metal staples. The large incision runs the entire length of the outside of his calf and is held by a loose stitch which resembles a shoelace. The closure is designed to allow them to tighten the closure as the inflammation subsides. Seeing these for the first time today as they changed the bandage gave us a more realistic picture of what kind of recovery we are going to be looking at over the weeks to come. The plan for now is that we will leave the PICU tomorrow and go to a regular room. This will be a welcome change as these rooms are situated more for comfort than the ICU. As far as Sawdog's condition goes it is still pretty pitiful. He gets morphine every three hours to manage the pain which is understandably intense after seeing the leg today. This steady stream of narcotics keeps him half sedated for the majority of the day and when he wakes it is usually because he is in pain and the next dose of drugs knocks him back out immediately. Tomorrow, that schedule will have to be adjusted as we begin physical therapy. He will not enjoy this ( and by he I mean his mother and me) but it is a necessary evil in order to make sure that the muscles in the leg heal properly. Prayers have been lifted up literally all around the world for our son over the last few days. From LA to Texas to Florida to Georgia to North Carolina to New York to Boston to Central Asia to South Africa to Japan our brothers and sisters in Christ have gotten on their knees on behalf of Sawyer. I am moved to tears by this demonstration of love. But this is not the love of people for a child. Most of you don't know my son. You have never met him. You don't know the name of his stuffed animal ( Rex, by the way). But yet you prayed. You cried. You took our need before the Creator and asked for his healing. What we saw was not a demonstration of a huge number of people's love for a boy most of them had never met. What we saw was a glimpse of just how much God loves each and every one of us. People all around the world have been following our story not because of their love for a little boy. People have been united by the love of God which has driven them to their knees, overtaken them emotionally at times, awoken them in the middle of the night and been poured out on behalf of a two year old boy and into the life of a family who desperately needed it. Some people look at this and don't really see anything spectacular. They see an illness brilliantly diagnosed by knowledgable physicians, nothing more. This two year old boy is not more special than anyone else and the circumstances surrounding his healing are ordinary at best. They miss the more amazing occurence. God's people all around the planet have put aside their busy lives and lifted up our family. As a result of our prayers, literally hundreds of God's people all over the planet began praying for us and sending us words of kindness and encouragement. He mobilized an army of volunteers through our local church to help with the logistics of our other kids during this ordeal, bring us meals in the hospital, even clean our house while we were away in hopes of rooting out the cause of this infection. These are not natural occurences. This doesn't happen every day. We praise God that it happened to us. We thank him for each and every one of your that are a part of this movement. Please thank him with us tonight. The credit is his.
Wednesday, May 12, 2010
Our old nemesis, Fever Monster, has returned. He has trudged into our ICU suite wearing lymphocyte boots and tainted our spinal tap. The fear now is spinal menangitis. We are awaiting further testing. For now 103 degrees and rising. Saddle up prayer warriors. The battle wages.
1 hour ago from Cher:
fever is down to 100! still concerned about spinal meningitis, and treating preventively. also concerned the infection has settled in his little lungs. i alternate between total freak-out and alarming calm...calmness comes when i remember that Sawyer Thornton Lair was NO ACCIDENT, that his days were ordered long before this day ever came along, and that God is not surprised by these events. His provision is PERFECT!
I feel like I need to give a little background here. Not much, but just a little. I was rescued from an eternity in hell when I was 17. I had been searching for something to fulfill me for a while. When approval from friends, a boyfriend, and competitive dancing did not make me feel whole, I didn't know where to turn. I wasn't brought up in a home where I wasn't shown love and affection. I was told probably too many times a day (according to my older brother once a day was plenty, thank you very much) how much I was loved by my parents. I wasn't brought up in a home that lacked discipline. My parents taught me boundaries and how to make choices that I wouldn't regret (and also how to fear the parent + a spanking). This wasn't something that my parents had lacked in providing for me. What was missing is something that everyone needs. When I discovered what I was missing it was as if Jesus had been running after me and all I had to do was turn around and run to Him. I had to acknowledge that I am in need of a Savior (not an easy task for an independent girl). I had to acknowledge that I can't do things on my own. I had to ask for Him to forgive me for my sins. I have to daily die myself and my selfish desires. This isn't something that I do easily or well a lot of days. I need God to give me strength. I need God to give me a desire to please Him and seek after the things that will bring Him glory. And that is the reason why we are here, why we were created... to bring God glory.
This post is getting to be quite long so to be continued at a later date...
Tuesday, May 11, 2010
"Well sports fans it has been a day. That is the only way to describe it. Sawyer is coming out of surgery right now and there are tears of joy running down our faces. The team of surgeons made three small incisions to check the pressure levels that had built up in little man's leg. The ankle and thigh were relatively normal and not at a point to cause concern. The calf was extremely high. They then made an incision the length of his calf to alleviate the pressure. The lead surgeon said that with pressure of that level within 24 hrs the entire muscle would have died. There was a bacterial infection that was causing the swelling. They believe the bacteria was a member of the Strep family. Remind us not to invite them over for Thanksgiving dinner next year! They left the wound open and laced it up like a shoe with the intent of tightening it over the next week as the infection abates. Bottom line- Doc says that the worst thing that will come of out of this little shindig looks like it will be an awesome scar to impress girls with in high school. The only remaining source of concern is the abnormalities that showed in some of his tests. They are performing a spinal tap as we speak to insure that the bacteria has not managed to get into his spinal fluid and therefore traveled to his brain. That is, at the moment, a distant possibility but one we are monitoring nonetheless. The prognosis is that we will be in the hospital with him for at least another week so we are not out of the woods yet. However, things are looking up. Way up. When nerves are not frayed and computer time not at such a premium I am looking forward to sharing how much we have been blessed by God through this experience. For now, know that we love you, are thankful for you, have been blessed by you, and that it looks like our little man will be ok."
They still need our prayers, but things are definitely looking better!!!
Below is the most recent update from Stephen (aka the dad). Prior to this update, Sawyer has been in the hospital for 2 days complete with a transfer via ambulance. His first symptoms were a bug similar to hand, foot, and mouth, but has turned into much more as you will read below. Please lift up this family with me.
"Well I would love to report that everything was hunky-dory in Sawyerland but alas that is not the case. Previously on 24(month old)- The MRI took twice as long as we initially thought which was a delightful experience for a waiting mother not allowed in the room. WakeMed will undoubtedly spend thousands re-wallpapering the waiting room from the mother claw marks on every vertical surface. The big concern at the moment was that his temperature would not regulate itself and that the infection was in his bones. The good news is that the MRI showed that the infection is not in his bones. The bad news is that the MRI showed inflamation of the tissue surrounding the muscles in the left leg. This looked to the team of pediatric specialists most like fasciitis. Before you google it they do not at this point believe it is the popular flesh-eating form of the bacteria. Just your garden variety severe bacterial infection of the tissue of the left leg. Good times. This diagnosis would fit nicely with their previous declaration of the interovirus. They think that perhaps the bacteria got into his body through one of the sores around his mouth and headed south to the land of the rising bum. They started a third antibiotic cocktail with the hope that this would reverse the swelling in his leg before any serious nerve damage had been done. Our other concern is that he hasn't eaten anything in around a week. There was talk about a possible feeding tube if his appetite didn't pick up. So last night we went to bed, Cher in the hospital and me on the couch, with a prayer in our hearts and hope on the horizon for a dramatic change of course for our two year old son. Unfortunately, morning brought very little solace. The antibiotics were not effective in reducing the swelling in his leg and the temperature continues to dip down to 97 and slowly climb back up. With the swelling, more pain which brought morphine to help make him comfortable. The situation had rapidly turned from bad morning to horrible nightmare. The pediatric surgeon was consulted last night just in case and today we opened that case. Sawyer was treated to another ride in an ambulance from WakeMed in Raleigh to the Pediatric ICU at UNC in Chapel Hill. I have until this point felt it was important to maintain some semblance of normalcy for the boys at home. Today our priorities changed. My wife needs me. I am here at the hospital now with her at Sawyer's side. We are awaiting the surgical consult to determine our next course of action. As always, our church community has amazed us with their physical support on the ground. The body of believers has certainly embraced us in every conceivable way. The future is a complete enigma at this point. I will continue to keep everyone as up to date as possible. While this is the most terrified that either of us has ever been, we rest in our God who is larger than any situation that could possibly befall us. There is no diagnosis that evades him. There is no bacteria he cannot eliminate, no infection he cannot treat. We love our child more than we could possibly express. Our God loves him more. We cry because he suffers. Our God knows what it means to watch a son suffer. We are comforted by the knowledge that the God who has ordered every aspect of our lives is not a distant force or theory but a present savior who knows and cares for his children and grants us all that we need to endure the course laid before us. Your prayers have sustained us in ways that I am excited to tell you about once these days are past. However, we continue to be in desperate need of his Spirit and pray that he is glorified in us. Thank you for all you are doing. Stephen and Cher"
Sawyer has been taken in for surgery. Please pray for his doctors, family, and of course healing for him.
Sunday, May 9, 2010
Saturday, May 8, 2010
*wearing 18 month or 24 month clothing (yes this time last year he wore 18 month, he is wearing some of the same clothes from last year, weird, huh?)
*wears a size 4 diaper, but we went back to cloth during the days while we are home (hoping this will help with the upcoming potty training)
*will sit on the potty
*going through a clingy stage with mama
*cries when left at church, and if others are picked up before him
*still dislikes weird sounds (blenders, air conditioner, vacuum, hair dryer, etc)
*knows his colors, size words, shapes
*throws, kicks, shoots, and tries to dribble balls
*loves crafts especially coloring, but is getting into stickers, playdoh, paint
*sings along with us
*makes up songs ("Big yellow tractor", "No-nuts, no-nuts, no-nuts", "Praise Ye Crackers")
*Go Fish is his favorite group
*Baby Einstein or Little Einstein are his fave movies
*saying long phrases (like 4+ words)
and I am sure I have forgotten tons
Friday, May 7, 2010
*wearing 3-6 month clothes, but can wear a few 6 month/6-9 month clothes
*saying mama like crazy
*can say dada, but doesn't often
*babbles baba, beh, and some wierd sucking in his breath type thing
*eating sweet potatoes, yogurt, pears, bananas, white potatoes, mango, applesauce, green beans
*can drink from a sippy cup
* loves his walker
*rolling all over, scooting everywhere
*A-DORES Zeke, literally lights up when he sees his brother
*has some serious red hair...
* and the temper to go with it
*opens his mouth to give kisses
*sucks on my chin (weird, but something I will want to remember because it makes me laugh)
*plays with his toes
*still in size 2 diapers, but wears cloth most the time